For those who have followed along on my newest journey, I found out the other day that I have a very significant hearing loss. I am very glad to finally know, and enter into the world of hearing. At least as well as I am going to hear.
First things first, I had written that they needed to rule out other complications before they could just call it a hearing loss.
On Friday morning, bright and early, I was laying in an MRI machine while they looked for a tumor on my brain. My doctor told me she felt quite confident that I did not have a tumor, however, she said it was imperative that they rule that out. So from Wednesday to Friday, my emotions were running high, wondering if I had just a hearing loss.
Friday afternoon, we found out that I do not have a tumor.
I simply have a hearing loss.
I have been celebrating with family ever since we found out.
Finding out I have a hearing loss was new, but it is all I know. Nothing changed there.
Learning that this is all it is, is exhilarating.
How could that be that I did not know my whole life that I have a hearing loss? Believe it or not, it is not all that surprising.
My family and I have spent countless hours putting pieces together. I am 50 years old, and we only just learned that I have a very significant hearing loss.
I have never heard how others hear, and I still hear some tones. So this has been my normal for as long as I can remember.
The tones I hear the best put my loss in mild/moderate hearing loss category. Those are my low tones. So if people had low tones, I mildly or moderately could not hear you.
As the pitch increases I am all the way up having severe hearing loss.
I do not have any damage to my ears either. Which makes the professionals surmise that it is most likely that I was born this way.
As we have pieced this together, so many things now make sense.
People would tell me I talk too loud. So I adjusted and spoke quieter. It all sounded the same to me, but I could feel in my throat that it was not as loud.
I would adjust my voice, depending on what someone told me. Usually family members. Sometimes friends, when I was little. Like, "Mom, you talk too loud." Or "Diane, I cannot hear you, can you please speak up." It all sounded the same to me, so I thought it was their issue but I "adjusted" accordingly.
My husband and I reminisced this weekend how when I was 18 I told him I would be afraid if something happened to me, because my voice does not travel very far, and I worried nobody would hear me scream. In my world, it did not sound loud enough for others to hear.
When I was a little girl, I had some kids tease me that I was too loud. So then I adjusted, the best a little kid can, and made my voice what I thought was less loud. I did not hear that I was too loud again that year, so I figured I must been more in control of my behaviors. I did not equate it to a hearing loss, because remember, my voice was my voice, was my voice. I felt it was more closely related to behaviors. And people reacted to me that way too. So I just did my best all my life to try to adjust my voice to what the feedback was by those around me.
Another instance was that I thought I could hear people better when they look at me. Depending on the person, I had mastered the art of lip reading, and my brain told me I was hearing them. I put their tones I could hear, together what I saw them say, and pieced together what they were saying.
I did miss a lot of what others said, which all of us are piecing together. Times when others thought I did not remember the details were actually more than likely times when I did not ever once for a second hear that detail.
And as I said the other day, I loved speaker phones for ever, because before speaker phones, I just was not as impressed by Alexander Graham Bell as the rest of the world was. I used phones, but everyone sounded very muffled or like they were mumbling.
And let's face it, the commercials convinced me it was a technology issue. "Can you hear me now?" was a tag line that proved to me that not all telephones or providers were providing clear reception. When speaker phones came out, I was super excited, because this was way better than the technology that we were all already using.
So I accommodated all along the way. Not realizing I was doing this all along the way.
On Monday I will be getting fitted for my new hearing aids. I think it will take a week to get them. If my hearing is going to be anything like it was the day I heard the audiologist when I got my diagnosis, I think I will fall over. They said to expect it to be.
For the first time in my life, as much is physically possible with modern technology, I will hear what all of the people in my life REALLY sound like.
For the first time in my life, I will hear what my husband and my children really sound like.
It takes my breath away.
I am excited to hear you world!
Thank you for all of the support and love you all have shown us as I enter into the world of hearing.
It truly is going to be a journey, that I promise I will share with you as I go.
Can you hear my now? Update....Test Results
This entry was posted on Saturday, June 4, 2016. You can follow any responses to this entry through the RSS 2.0. You can leave a response.